Tag Archives: pulmonary hypertension

The shower chair

Today I used a shower chair I had a shower and sat on a chair Might sound like a fact that I’m noting It’s actually a sentence filled with sadness Not because of pride- because my body’s shutting down and … Continue reading

Posted in This and that | Tagged , , , , , , , , , , , , , , , , , | Leave a comment

3 Stars

On Monday, I finally got an urgent appointment to see the Transplant Doctor. I refused to get off the phone until something was organised for me before the unit closes for Christmas. Dr Ice as I mentioned on my post … Continue reading

Posted in This and that | Tagged , , , , , , , , , , , , , , , , , , , , , | 1 Comment

I found my tribe

Being on the transplant list has taken its toll this week again I’m so damn tired! Mentally and Physically Christmas is around the corner – 16 days to be exact I’m turning 40 next month Planning a birthday party and … Continue reading

Posted in double lung transplant | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment

A letter to G

When you’re dancing with life and death, reflection kicks in. Most of this year, Ive been going through memories from my childhood, high school years, the friends I kept and the friends I lost, the family members that remain and … Continue reading

Posted in This and that | Tagged , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Don’t Miss the Call

I officially went on the transplant list for double lungs on the 4th of September. At first, I was anxious. I would go to bed each night and whisper in the dark – “Please don’t get the call tonight! I’m … Continue reading

Posted in double lung transplant | Tagged , , , , , , , , , , , , , , , | 3 Comments

Getting new lungs

I didn’t know where to start with this post. I didn’t know how to get a heap of emotions, advice, information in one post. It all began when…. I went to the supermarket one Sunday, pushed a trolley heaped with … Continue reading

Posted in This and that | Tagged , , , , , , , , , , , , , , | Leave a comment

230120 – Waiting for Perfect

I haven’t written in a long time. I often write blog posts in my head, I think of things I would love to share… but then I talk myself out of it. Excuses creep in. Insecurity creeps in. I’m always … Continue reading

Posted in On the Daily | Tagged , , , , , , | 2 Comments