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Tag Archives: lung transplant
Fitness to Drive
We take driving for granted. Well most of us do. I did, until I didn’t. We pass the test when we are around 17 and we renew the licence and keep on going. Most of us complain about the photo … Continue reading
The shower chair
Today I used a shower chair I had a shower and sat on a chair Might sound like a fact that I’m noting It’s actually a sentence filled with sadness Not because of pride- because my body’s shutting down and … Continue reading
Posted in This and that
Tagged acceptance, accepting the things you cant change, breathless, breathless not hopeless, dealing with fear, dealing wth grief, double lung transplant, invisible illness, lung transplant, Lung Transplant waiting list, organ donation, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, spoonie, spoonies, sydney, waiting for transplant
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3 Stars
On Monday, I finally got an urgent appointment to see the Transplant Doctor. I refused to get off the phone until something was organised for me before the unit closes for Christmas. Dr Ice as I mentioned on my post … Continue reading
Posted in This and that
Tagged acceptance, accepting the things you cant change, breathless, breathless not hopeless, dealing with fear, dealing wth grief, donor, double lung transplant, invisible illness, lung transplant, Lung Transplant waiting list, organ donation, Oxygen, oxygen4thejourney, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, spoonie, spoonies, sydney, transplant, waiting for transplant
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I found my tribe
Being on the transplant list has taken its toll this week again I’m so damn tired! Mentally and Physically Christmas is around the corner – 16 days to be exact I’m turning 40 next month Planning a birthday party and … Continue reading
Posted in double lung transplant
Tagged accepting the things you cant change, breathless, breathless not hopeless, dealing with fear, dealing wth grief, donor, double lung transplant, invisible illness, lung transplant, Lung Transplant waiting list, organ donation, Oxygen, oxygen4thejourney, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, sydney, transplant, waiting for transplant
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A letter to G
When you’re dancing with life and death, reflection kicks in. Most of this year, Ive been going through memories from my childhood, high school years, the friends I kept and the friends I lost, the family members that remain and … Continue reading
Posted in This and that
Tagged acceptance, accepting the things you cant change, blogging, breathless, breathless not hopeless, dealing with fear, dealing wth grief, donor, double lung transplant, getting organized, invisible illness, lung transplant, Lung Transplant waiting list, minimal, Minimalism, organ donation, oxygen4thejourney, positive vibes, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, simplify, spoonies, waiting for transplant
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I’m not waiting!
I’ve been on the transplant list since the beginning of September this year. In and out of hospital all year. Should have gone on the list alot sooner It took alot of work with my psychologist to accept that I … Continue reading
Where’s home?
Today I went to my house. The house I lived in with my husband and son and cat before March 2020. Its been a while since I have lived there full-time While waiting for my double lung transplant I live … Continue reading
Don’t Miss the Call
I officially went on the transplant list for double lungs on the 4th of September. At first, I was anxious. I would go to bed each night and whisper in the dark – “Please don’t get the call tonight! I’m … Continue reading
Posted in double lung transplant
Tagged breathless, breathless not hopeless, donor, donor list, double lung transplant, faith, invisible illness, lung transplant, lungs, organ donation, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, spoonie, spoonies, waiting for transplant
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Getting new lungs
I didn’t know where to start with this post. I didn’t know how to get a heap of emotions, advice, information in one post. It all began when…. I went to the supermarket one Sunday, pushed a trolley heaped with … Continue reading
