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July 2021 M T W T F S S 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 -
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Tag Archives: Lung Transplant waiting list
Fitness to Drive
We take driving for granted. Well most of us do. I did, until I didn’t. We pass the test when we are around 17 and we renew the licence and keep on going. Most of us complain about the photo … Continue reading
The shower chair
Today I used a shower chair I had a shower and sat on a chair Might sound like a fact that I’m noting It’s actually a sentence filled with sadness Not because of pride- because my body’s shutting down and … Continue reading
Posted in This and that
Tagged acceptance, accepting the things you cant change, breathless, breathless not hopeless, dealing with fear, dealing wth grief, double lung transplant, invisible illness, lung transplant, Lung Transplant waiting list, organ donation, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, spoonie, spoonies, sydney, waiting for transplant
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3 Stars
On Monday, I finally got an urgent appointment to see the Transplant Doctor. I refused to get off the phone until something was organised for me before the unit closes for Christmas. Dr Ice as I mentioned on my post … Continue reading
Posted in This and that
Tagged acceptance, accepting the things you cant change, breathless, breathless not hopeless, dealing with fear, dealing wth grief, donor, double lung transplant, invisible illness, lung transplant, Lung Transplant waiting list, organ donation, Oxygen, oxygen4thejourney, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, spoonie, spoonies, sydney, transplant, waiting for transplant
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I found my tribe
Being on the transplant list has taken its toll this week again I’m so damn tired! Mentally and Physically Christmas is around the corner – 16 days to be exact I’m turning 40 next month Planning a birthday party and … Continue reading
Posted in double lung transplant
Tagged accepting the things you cant change, breathless, breathless not hopeless, dealing with fear, dealing wth grief, donor, double lung transplant, invisible illness, lung transplant, Lung Transplant waiting list, organ donation, Oxygen, oxygen4thejourney, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, sydney, transplant, waiting for transplant
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A letter to G
When you’re dancing with life and death, reflection kicks in. Most of this year, Ive been going through memories from my childhood, high school years, the friends I kept and the friends I lost, the family members that remain and … Continue reading
Posted in This and that
Tagged acceptance, accepting the things you cant change, blogging, breathless, breathless not hopeless, dealing with fear, dealing wth grief, donor, double lung transplant, getting organized, invisible illness, lung transplant, Lung Transplant waiting list, minimal, Minimalism, organ donation, oxygen4thejourney, positive vibes, Pulmonary Fibrosis, pulmonary hypertension, right heart failure, simplify, spoonies, waiting for transplant
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I’m not waiting!
I’ve been on the transplant list since the beginning of September this year. In and out of hospital all year. Should have gone on the list alot sooner It took alot of work with my psychologist to accept that I … Continue reading
